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Showing posts from May, 2019

How I Manage

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“I could never do what you do.” “How do you manage?”  Yes, having a severely disabled child has its challenges, but they are your child and you love and do everything possible to help your children. His needs are just different. My life may be more difficult than others’ in some ways… weekly specialist appointments and multiple therapies, fighting for services, insurance coverage, and resources, spoon feeding my three-year-old all of his meals and holding a cup to his lips for every sip, and having to helplessly watch my child suffer from seizures daily. Bennett’s communication is very minimal and only his father and I truly understand his sounds enough to know his needs, but even then we are left guessing, and I’m always feeling like I’m not doing enough for him if I’m not engaging him in some kind of therapy all day long, every day of his life. However, my life is also simpler than others’ may be who have two children, ages 3 and 5. Bennett can and will nap anywhere at any time! He lov…