Showing posts from January, 2021

Yes, I Live in Fear

 A year ago, Bennett was hospitalized for almost 3 weeks with RSV. He was almost intubated and I didn’t know if he would be coming home. I watched my child struggle to breathe for over an hour while three PICU nurses worked on him. This happened daily during his stay. Yes, I live in fear. I started living in fear for my child’s life the first time he was rushed in an ambulance to the hospital at 7 months old, not knowing if he would live. After he was hospitalized for two weeks with the common cold in September of 2019, I didn’t want to send him back to preschool. I had to constantly weigh the risks with the rewards and if I didn’t send him, we would have to forfeit his therapies and services. I inquired about homebound school, but was told he didn’t qualify. I was also told that if he didn’t attend school in Kindergarten, we would be penalized. We’ll cross that bridge when we get to it next year. When “Covid is over”, our lives will not go back to “normal” like everyone else’s. Our li